Wow its been a while Mom and Dad have been stressed, trying to get mason to eat better has been lots of work. He now has a feeding tube (tube we place threw his nose down his throat in to his stomach). we started out bolus feeding him ( gravity feed done through a large syringe) but he threw more up this way than we could keep down. So now we are feeding him what he will throughout the day then doing a continuous feed ( we use the same tube but have pump that feeds him slowly through the night) for some extra calories. Mason is pulling himself up to his feet trying to crawl and is growing so fast. We have been out for walks in the sunshine. Mason has a new car that we push around with him in. I think he likes it. He always has a smile on his face. Dad went home for a few days this last week to get some spring cleaning done. He tried really hard to get everything done. But he was most impressed to come back and see how much his little man had grown.

We learned today through Face book that another Mason received a new heart during the Easter weekend and now his body is rejecting his heart. As soon as we found out we were praying for him. We pray that all goes well and that he will heal quickly. We were very fortunate to be blessed with such a quick recovery with our son. We feel so badly for this other family. We can only imagine what stress they are under. We will continue to pray for this little Mason until we hear otherwise in his behalf. We know and understand prayers work and do not hesitate when someone asks in their behalf. We had so many people praying for us. We could spend a year on our knees and never compensate for the prayers in our behalf.

We have some friends putting together a fundraiser in our behalf to help fix our house so that it is healthy for Masons return home. We are so grateful to all those involved. We will do everything in our ability to help repay the debt to all those that are extending their assets and abilities in our behalf. We feel a great debt to those who are so willing to help us. All that we can say is THANK YOU!!! We hope to extend a hand to others in need.

Here is a poem I love written by another heart mom.................


WHEN I BECAME A HEART MOTHER

ONE DAY MY WORLD CAME CRASHING DOWN,
I'LL NEVER BE THE SAME.
THEY TOLD ME THAT MY CHILD WAS SICK.
I THOUGHT, "AM I TO BLAME"?
I DON'T THINK I CAN HANDLE THIS.
I AM REALLY NOT THAT STRONG.
IT SEEMED MY HEART WAS BREAKING.
I HAVE LOVED HIM FOR SO LONG.
I WILL NOT GIVE UP ON THIS CHILD.
I WILL LISTEN TO YOUR ADVICE.
I WILL GIVE MY CHILD ANY CHANCE.
NO MATTER WHAT THE PRICE.
I WILL LEARN ALL THAT I NEED TO HELP MY CHILD THRIVE.
I'LL EVEN USE THAT FEEDING TUBE.
MY CHILD MUST SURVIVE!
WILL HE NEED A LOT OF THERAPY?
WILL HE GAIN THE NEEDED WEIGHT?
PLEASE GOD, HELP ME DO THIS.
I WILL ACCEPT OUR FATE.
WHEN THE MONITORS BEEP AT NIGHT,
IT SERVES AS MY REMINDER.
HOW MANY PARENTS WOULD LOVE THAT SOUND.
TOMORROW I WILL BE KINDER.
AS ANOTHER ANGEL EARNS HIS WINGS,
I RUN TO MY CHILD'S BED.
I WATCH HIM SLEEP FOR QUITE A WHILE.
I BEND DOWN AND KISS HIS HEAD.
I CRY FOR THE PARENTS WHOSE HEARTS HAVE BEEN BROKEN.
I LOOK TO YOU WONDERING WHY?
OH LORD, I JUST CAN'T KNOW YOUR WAYS....
NO MATTER HOW I TRY.
AND YET, I TRUST YOU HOLD HIS LIFE,
AND GUIDE US THROUGH EACH DAY.
MY MIND SAYS SAVOR EACH MOMENT HE'S HERE,
BUT MY HEART BEGS, "PLEASE LET HIM STAY"!
FROM PACING THE SURGICAL WAITING ROOM,
TO SITTING BY HIS BED.
FROM WISHING FOR A GOOD NIGHTS SLEEP,
TO LEARNING EVERY MED.
FROM WONDERING, "WILL HE BE ALRIGHT?",
TO WATCHING HIM REACH OUT HIS HANDS.
WITH EVERY SMILE MY HEART JUST MELTS,
DESPITE LIFE'S HARSH DEMANDS.
FOR ALL WHO SEE THAT FADED LINE.
I LOOK TO THEM AND SMILE.
YOU SEE MY CHILD IS LOVED SO MUCH.
I WOULD FACE ANY TRIAL.
THAT SCAR I TRACE WITH MY FINGER
(IT'S THE DOOR TO HIS BEAUTIFUL HEART).
GOD MUST HAVE KNOWN HOW MUCH I'D LOVE HIM
(JUST AS HE LOVED HIM FROM THE START).
A HEART MOM IS ALWAYS A HEART MOM.
NOW WISE BEYOND HER YEARS.
FOR THOSE WHO HAVE ANGELS IN HEAVEN,
OUR HEARTS SHARE IN ALL OF YOUR TEARS.
EVERY DAY I WILL TRY AND REMEMBER,
I WAS CHOSEN FOR HIM (AND NO OTHER).
I WILL ALWAYS EMBRACE THAT BEAUTIFUL DAY.......
WHEN I BECAME A "HEART MOTHER"